heart trouble

i was diagnosied with ks last years (when i was 21) eventhough id been on treatment and had tests since i was 19 they gave me this diganoies has they also found that i have a narrowing vale in my heart and ive got to have surgury to get it fixed

i just wanted to know if there is anyone else who has had some forum of heart trouble with this condtion or sufferd from mermers as a child