Hi, I was diagnosed with KS about 20 years ago. I've never had a sense of smell and I didn't go through puberty, but I was never diagnosed with anything. Not having periods wasn't considered a big problem by any GP I saw.

In my 20's I damaged my pelvis in an accident and was eventually sent for an x-ray, which showed an anomaly in the bones in my pelvis and spine, I had the skeletal structure of an adolescent. I was sent for a bone densometry scan as tehre was a piossibilyt that i had osteoporosis, the scan showed early signs of bone density loss, and I was finally diagnosed with Kallman's. I was told nothing about the condition, and still don't know much about it, so thank goodness for the internet!

I was put on HRT for the osteoporosis and at the ripe old age of 32 developed boobs!! I've still never had a period, and am probably infertile - which doesn't bother me as I'm not very maternal - although it tends to put men off.

Aside from the no sense of smell and delayed/non existent puberty I don't seem to have any other symptoms, aside from strange heart palpitations...

I'm due to go for another bone densitometry scan this year - the last two showed no signs of osteoporosis (I'm not on HRT any more), so I'm blaming the initial diagnosis on my being bed ridden for 6 months with the damaged pelvis.

:-)