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Information on this site is provided by people with personal experience of Kallmann's syndrome. Symptoms and appropriate treatments are different for different people. You should not treat anything on this site as a substitute for advice from a trained medical professional.
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- Site Counter: 651559Unique Visitor: 100844Registered Users: 3732Unregistered Users: 231Published Nodes: 719Unpublished Nodes: 0Your IP: 38.107.179.241Since: 2008-06-29
General
Hello I am the mother of a boy who is just in the early stages of being diagnosed with this condition. Please excuse my ingnorance of the condition,as yet I know very little about it. When the doctor first mentioned it I thought he would have a few injections and things would then sort them self out, it's only now after looking through this that I am begining to understand the seriousness of his situation.It throws up so many questions that I don't know where to start! I suppose the first one being how do I get him to understand what it all entails? He hasen't started any treatment yet, but they said it would make everything catch up in line with his piers is that not so? I know the main thing that concerned him was the size of his genitals (he came to me and said just that they weren't growing and were the same as when he was a toddler)Dose treatment help? will it make a difference to his size? Will he be able to have normal relationships with girls? Then there is the question of the drugs and side effects etc? He is a sweet boy with a great sense of humour but innocent and young for his age (due to the condition? I don't know}I worry about mood swings will he be unrecognisable? How do I help him to deal with it all? where do you start?

