I am hoping someone who has Kallmans can help me out with some questions. My son was diagnosed with Kallmans at 3 mos. of age and is now 3.5 yrs. He is hearing and visually impaired, and upon reading up on the syndrome it seems he runs the gambit with everything. Since he can't talk to us we have to watch for visual cues and our most recent dilema is high fevers, or fevers that spike rapidly. Example is this morning he got a bit chilled and just layed on the bed shivering. I layed down with him to warm him up and he started to get a fever (101.8) about .5 hr later, then spiked up to 104. within an hour after getting tylenol. Did anyone have problems with temp. regulation?
We already see an Endocrinologist and he is on hormone shots and I was informed that his hypothalomus is probably not functioning proper, but was wondering how, what and why re. fevers and regulation done by an actual person who's lived with this syndrome.