I am planning another meeting for KS / HH patients this year.

It will be held at the Royal Free Hospital, Hampstead, London on Saturday 15th May.

Professor Pierre Bouloux and Dr Richard Quinton will be two of the speakers and I am in the process of trying to find one more.

I am in the process of applying for a grant from the Endocrinology Society to help fund the event. There may have to be a small charge to cover costs if I can't obtain full funding.

The event should be a good chance to talk to probably the two leading experts in this country on KS / HH and a chance to meet fellow patients of all ages.

The format should be similar to the last meeting in Worcester, running from 10:30am to 5pm with a buffet lunch.

I am still in the early stages of planning and will post more details as and when I can.

I think most people who have attended these meetings in the past have got something out of them. The chance to meet other people with the same condition and be able to talk about shared experiences can be helpful to a lot of people I hope.