- General questions
- What is the best age for treatment to start ?
- Questions to ask the GP if you are worried about delayed puberty:
- What is Kallmann's syndrome? (1)
- When was Kallmann's syndrome first discovered?
- When does puberty become ‘delayed’?
- What does hypogonadal mean?
- What does hypogonadotrophic mean?
- What does congenital mean?
- What is the genetic basis of KS and IHH ?
- Why is testosterone important?
- Are there any famous people known to have Kallmann's syndrome ?
- FAQ's
- Diagnosis
- Treatment Options
- Fertility Options
- Osteoporosis Risks
- Medical Papers
- Genetics and Inheritance
- External web sites
Kallmann's Syndrome Information
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Medical Warning
Information on this site is provided by people with personal experience of Kallmann's syndrome. Symptoms and appropriate treatments are different for different people. You should not treat anything on this site as a substitute for advice from a trained medical professional.
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© 2008 Neil Smith
When does puberty become ‘delayed’?
The age of onset of puberty can vary. It starts earlier in girls than in boys. Some specialists think it that if by the age of 13 for girls and 15 for boys no signs of starting puberty then they should be referred to a specialist doctor, usually an endocrinologist.
There is an article on the normal stages of puberty elsewhere on this site. In general any girl who has not had their first period or a boy showing any testicular development by the age of 15 should be investigated for a delay of puberty.
In boys the testes should have descended in the scrotum before or just after birth. Un-descended testes (cryptorchidism) is a not an uncommon event in boys and can be easily rectified with drugs or surgery. A history of bilateral cryptorchidism (both testes undescended) should alert doctors to the possibility of a problem with puberty later, but this does not necessarily mean that a boy with cryptorchadism will develop Kallmann’s.

